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Harriet`s Neurological and Spinal review at QMC

Harriet`s Neurological and Spinal review at QMC
Last week was a busy week for Harriet and ourselves, we had to attend the Queens Medical Center in Nottingham, for a neurological review and a spinal review and had to give blood samples for the genetic tests. Tuesday 3rd June 2014 - we arrived at the Queen's Medical Center...
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Harriet Eleanor Gregory reaches her Milestone 5th Birthday

Harriet Eleanor Gregory reaches her Milestone 5th Birthday
If someone had told me 5 years ago, that I would be writing a blog to mark Harriet`s 5th Birthday, I would have said that it would not have been possible. All the consultant`s, doctors and nurses were telling us that Harriet had a life limiting disease and to make...
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Genetic Consultant is Baffled by Harriet`s condition 4 years on

Genetic Consultant is Baffled by Harriet`s condition 4 years on
It is nearly 4 years since Harriet was last seen by the genetics consultant Dr. Mohnish Suri and his team, at the Nottingham City Hospital. Back then we thought genetic counselling was simply talking about living with a child that had some unknown genetic or undiagnosed condition, but we quickly...
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Harriet`s Life with Seizures

Harriet`s Life with Seizures
After Harriet`s massive seizure in October, we were concerned that Harriet was now facing a life threatening seizures without having any sort of plan in place. A few weeks past and Harriet had a fourth seizure; we administered the Buccolam Midazolam, which controlled the seizure while we called for the...
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Harriet`s third seizure proved to be life threatening

Harriet`s third seizure proved to be life threatening
A few weeks after Harriet`s first ever seizure , we met with the neurologist, Dr. William Whitehouse and some of the consultants from the Derby Royal Hospital, who talked about Harriet and to some extent the seizure she had at the end of June. The consultants felt this was an...
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