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Harriet's Blog

The latest news about Harriet
Feb
28

Genetic Consultant is Baffled by Harriet`s condition 4 years on

It is nearly 4 years since Harriet was last seen by the genetics consultant Dr. Mohnish Suri and his team, at the Nottingham City Hospital. Back then we thought genetic counselling was simply talking about living with a child that had some unknown genetic or undiagnosed condition, but we quickly...
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  2110 Hits
2110 Hits
Jan
20

Harriet`s Life with Seizures

After Harriet`s massive seizure in October, we were concerned that Harriet was now facing a life threatening seizures without having any sort of plan in place. A few weeks past and Harriet had a fourth seizure; we administered the Buccolam Midazolam, which controlled the seizure while we called for the...
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  2738 Hits
2738 Hits
Oct
18

Harriet`s third seizure proved to be life threatening

A few weeks after Harriet`s first ever seizure , we met with the neurologist, Dr. William Whitehouse and some of the consultants from the Derby Royal Hospital, who talked about Harriet and to some extent the seizure she had at the end of June. The consultants felt this was an...
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  2803 Hits
2803 Hits
Jul
01

Harriet is Rushed to Hospital after suffering a Seizure

It was just after 5.00 am on Saturday 29 th June 2013, when Harriet`s Saturation monitor alarmed, at a glance I could see that her oxygen levels were dropping and quickly went over to find out what was wrong. Initially I noticed that Harriet had alot of mouth and tracheostomy...
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  2015 Hits
2015 Hits
May
18

Professor Vyas gives us some hope for Harriet

In late November 2012 we went to see the respiratory professor Harish Vyas, at the Queen`s Medical Centre in Nottingham, with Harriet.  We were concerned that Harriet was going to struggle to make it through another winter and that we needed some sort of emergency respiratory plan, should Harriet start...
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  1601 Hits
1601 Hits
Mar
21

Harriet`s Hand and Foot Splints

Harriet had been referred to the Occupational therapy team at the Derby Royal Hospital for hand splints, due the severe problems she was experiencing with both her hands over a number of years. It seemed that Harriet`s care had not been as smooth as it could have been and without...
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  1534 Hits
1534 Hits