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Harriet's Blog

The latest news about Harriet
Oct
18

Harriet`s third seizure proved to be life threatening

A few weeks after Harriet`s first ever seizure , we met with the neurologist, Dr. William Whitehouse and some of the consultants from the Derby Royal Hospital, who talked about Harriet and to some extent the seizure she had at the end of June. The consultants felt this was an...
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  2741 Hits
2741 Hits
Jul
01

Harriet is Rushed to Hospital after suffering a Seizure

It was just after 5.00 am on Saturday 29 th June 2013, when Harriet`s Saturation monitor alarmed, at a glance I could see that her oxygen levels were dropping and quickly went over to find out what was wrong. Initially I noticed that Harriet had alot of mouth and tracheostomy...
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  1989 Hits
1989 Hits
May
18

Professor Vyas gives us some hope for Harriet

In late November 2012 we went to see the respiratory professor Harish Vyas, at the Queen`s Medical Centre in Nottingham, with Harriet.  We were concerned that Harriet was going to struggle to make it through another winter and that we needed some sort of emergency respiratory plan, should Harriet start...
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  1566 Hits
1566 Hits
Mar
21

Harriet`s Hand and Foot Splints

Harriet had been referred to the Occupational therapy team at the Derby Royal Hospital for hand splints, due the severe problems she was experiencing with both her hands over a number of years. It seemed that Harriet`s care had not been as smooth as it could have been and without...
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  1505 Hits
1505 Hits
Jan
10

Stem Cell trials could bring Hope for Harriet

In the search to find a cure for Harriet`s debilitating white matter condition, we have come across many stumbling blocks and have had to do a lot of research into what can only be described as a Stem Cell mine field. Over the course of the last 3 years, we...
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  2478 Hits
2478 Hits
Nov
21

Professor Harish Vyas Looks Into Harriet`s Respiratory Episodes

It is now just over four weeks, since Harriet suffered a serious respiratory attack and was admitted to the Royal Derby Hospital`s, Children Intensive care Unit. Harriet is still not one hundred percent, but is slowly getting back to a stable condition for Harriet. After Harriet had been discharged from...
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  3341 Hits
3341 Hits