Blog

Harriet Returned to Physiotherapy Harriet seemed to struggle the last time we took her to physiotherapy and came down with a virus that saw her back in hospital and therefore we very careful not to push her too much on her first day back . Harriet settled in well and her...

Harriet was booked in to see the eye specialist in the Derby Children’s hospital this morning, we were quite apprehensive considering all the bad news we seemed to keep getting regarding anything to do with Harriet`s medical condition and just wanted to know whether she could see or not . The...

Harriet started to have breathing problems late Thursday night and kept us awake during the night as she needed regular suction from her tracheostomy and nebulizers to help maintain her saturations  .  Harriet also needed long bursts of oxygen to help with her breathing, but she was still struggling . At about...

Harriet had been referred to the Genetics Clinic at Nottingham City Hospital to be seen by Mohnish Suri and his genetics  team , regarding Harriet`s development . We arrived at the hospital at 11.00a.m this morning and had to wait a few minutes until we were seen by the consultant and were...

Harriet had been feeling poorly over the course of the last couple of days, but seemed to calm when she was sleeping, but at 5.am this morning we had to call 999 for an ambulance as Harriet`s oxygen levels started to fall to dangerous levels and her breathing became very erratic....

In early December 2009 Great Ormond Street had requested some further tests to be conducted by the QMC in Nottingham, the tests consisted of a muscle biopsy, lumber puncture, urine tests and an array of Blood tests . Christmas became a very anxious time for us as we just wanted to...