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Blog

The latest news about Harriet
Mar
14

HARRIET NEEDS EMERGENCY SERVICES

Harriet had been feeling poorly over the course of the last couple of days, but seemed to calm when she was sleeping, but at 5.am this morning we had to call 999 for an ambulance as Harriet`s oxygen levels started to fall to dangerous levels and her breathing became very erratic.The...
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1383 Hits
Feb
06

HARRIET RETURNS TO QMC FOR TESTS

In early December 2009 Great Ormond Street had requested some further tests to be conducted by the QMC in Nottingham, the tests consisted of a muscle biopsy, lumber puncture, urine tests and an array of Blood tests .Christmas became a very anxious time for us as we just wanted to get...
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2547 Hits
Feb
01

Baby sitting Harriet

Times passed so quickly with lots of ups and downs and it’s been so long since Jason and Lesley have been out together.  Soon to change because Rachael and  I  baby sat last night and Harriet was wonderful.  Although we know what to do in emergencies we still feel a little nervous should anything happen.  We...
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  1396 Hits
1396 Hits
Dec
16

Harriet's New Pine Cot Bed Arrived

We had been struggling to look after Harriet over the course of the last few months due to her cot being  so   low, leaning into the cot to suction her or give her oxygen was taking a strain on our backs and therefore  when one of the members of the Derby City Hospital kite...
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  1993 Hits
1993 Hits
Dec
13

Harriet 999

Harriet had picked a cold and had been extremely hard to manage over the course of the last few days, her secretions had got to a point whereby we were suctioning our her Tracheostomy and nose every 15 minutes .Harriet’s breathing had become very erratic, her chest had started to contract,...
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  1600 Hits
1600 Hits