Blog

Harriet had been feeling poorly over the course of the last couple of days, but seemed to calm when she was sleeping, but at 5.am this morning we had to call 999 for an ambulance as Harriet`s oxygen levels started to fall to dangerous levels and her breathing became very erratic.The...

In early December 2009 Great Ormond Street had requested some further tests to be conducted by the QMC in Nottingham, the tests consisted of a muscle biopsy, lumber puncture, urine tests and an array of Blood tests .Christmas became a very anxious time for us as we just wanted to get...

Times passed so quickly with lots of ups and downs and it’s been so long since Jason and Lesley have been out together.  Soon to change because Rachael and  I  baby sat last night and Harriet was wonderful.  Although we know what to do in emergencies we still feel a little nervous should anything happen.  We...

We had been struggling to look after Harriet over the course of the last few months due to her cot being  so   low, leaning into the cot to suction her or give her oxygen was taking a strain on our backs and therefore  when one of the members of the Derby City Hospital kite...

Harriet had picked a cold and had been extremely hard to manage over the course of the last few days, her secretions had got to a point whereby we were suctioning our her Tracheostomy and nose every 15 minutes .Harriet’s breathing had become very erratic, her chest had started to contract,...