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Harriet`s third seizure proved to be life threatening

Harriet`s third seizure proved to be life threatening
A few weeks after Harriet`s first ever seizure , we met with the neurologist, Dr. William Whitehouse and some of the consultants from the Derby Royal Hospital, who talked about Harriet and to some extent the seizure she had at the end of June. The consultants felt this was an...
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Harriet is Rushed to Hospital after suffering a Seizure

Harriet is Rushed to Hospital after suffering a Seizure
It was just after 5.00 am on Saturday 29 th June 2013, when Harriet`s Saturation monitor alarmed, at a glance I could see that her oxygen levels were dropping and quickly went over to find out what was wrong. Initially I noticed that Harriet had alot of mouth and tracheostomy...
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Professor Vyas gives us some hope for Harriet

Professor Vyas gives us some hope for Harriet
In late November 2012 we went to see the respiratory professor Harish Vyas, at the Queen`s Medical Centre in Nottingham, with Harriet.  We were concerned that Harriet was going to struggle to make it through another winter and that we needed some sort of emergency respiratory plan, should Harriet start...
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Harriet`s Hand and Foot Splints

Harriet`s Hand and Foot Splints
Harriet had been referred to the Occupational therapy team at the Derby Royal Hospital for hand splints, due the severe problems she was experiencing with both her hands over a number of years. It seemed that Harriet`s care had not been as smooth as it could have been and without...
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Stem Cell trials could bring Hope for Harriet

Stem Cell trials could bring Hope for Harriet
In the search to find a cure for Harriet`s debilitating white matter condition, we have come across many stumbling blocks and have had to do a lot of research into what can only be described as a Stem Cell mine field. Over the course of the last 3 years, we...
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