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Harriet is Rushed into the Royal Derby Hospital

 

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It had only been a few weeks since Harriet had an assessment by her neurologist at the Queens Medical centre in Nottingham, he was very happy with Harriet`s progress and was pleased that she had not been admitted into hospital .

A matter of a few weeks on and we noticed that Harriet`s saturations levels started to change, the monitor was showing that Harriet had not only lower levels of oxygen in her blood, but her heart rate was significantly raised, which was very alarming .

We did not panick and thought that Harriet may be teething or had picked up a virus and therefore continued to care for Harriet in our usual way. As the day progressed we noticed that Harriet`s condition was starting to deteriorate and decided to do an emergency tracheostomy change in order to rule out that there was nothing blocking her air way.

The tracheostomy change was done and Harriet was still deteriorating, it was simply heart rendering to see Harriet in distress, there was nothing we could do and new that if we did not call the ambulance soon that Harriet may not make it to hospital.

We called the ambulance and within a few minutes the first paramedic was on seen, she asked about Harriet`s condition and helped us give Harriet nebulizers and oxygen to try and control Harriet`s breathing, but this was simply an uphill struggle and the second ambulance team arrived to collect Harriet.

All we could think about was getting Harriet to a safe place where they had the equipment and people that could help our little girl, the journey in the ambulance was very quick, but Harriet was still deterioate.

 

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John reaches for the skies to help Harriet

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It’s been months in preparation and now June 19th has arrived when local businessman  John Burton finally  takes to the skies for the parachute jump  which will raise further funds  for Harriet Gregory.

Previously publicised on local radio John explained how he has the most terrible fear of heights and how it has taken every emotion possible to try an overcome his fear and jump from the plane.

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Harriet`s 2nd Birthday

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We were all very excited that Harriet was nearly two and that she not going to spend her second birthday in hospital.

It was always going to be hard deciding what to do on Harriet`s second birthday, as she was simply very limited as to what she could do and with the weather being very unpredictable, we needed to make sure that it was not to cold, rainy or windy.

We looked on the internet for areas that would be suitable for children with disabilities and special needs, but there was simply nothing that was geared towards children like Harriet.

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Harriet visits the Gastrostomy Surgeon at the QMC

Harriet had been referred to see the Gastrostomy surgeon at the Queen Medical Centre in Nottingham, as her consultants were concerned that the nasal gastric tube that was feeding Harriet feed and medicines may start to cause problems with her breathing.

The appointment came through within a few months and although we were both very anxious about going to see the surgeon, we knew that it was something we had to do in order to find out whether this would help Harriet in the long term.

We arrived at the QMC, just before 10.00 am and made our way to the children`s outpatient area at the hospital, the nurse booked Harriet in and then took her measurements and weight.

After a few minutes we were called into see the Mr. Singh, who was the consultant surgeon for this type of procedure. He asked how Harriet was and whether she had developed any further problems.

We told Mr. Singh that although Harriet was very complex and had ongoing neurological problems, that she was currently stable and happy within herself.

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Derby 10k Run for Harriet

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On April 3rd 2011 Shirley Insley on the left and Melissa Insley on the right, completed the Derby 10k race in 1 hour and 5 minutes after training for more than six months for the event .

Melissa and Shirley contacted us a few months before the event and asked if they could raise funds for the Help Harriet Trust, as they had both read alot about Harriet and what we were trying to do for her.

The mother and daughter team managed to raised an amazing £547.50 from family and friends.

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