Blog

Times passed so quickly with lots of ups and downs and it’s been so long since Jason and Lesley have been out together.  Soon to change because Rachael and  I  baby sat last night and Harriet was wonderful.  Although we know what to do in emergencies we still feel a little nervous should anything happen.  We...

We had been struggling to look after Harriet over the course of the last few months due to her cot being  so   low, leaning into the cot to suction her or give her oxygen was taking a strain on our backs and therefore  when one of the members of the Derby City Hospital kite...

Harriet had picked a cold and had been extremely hard to manage over the course of the last few days, her secretions had got to a point whereby we were suctioning our her Tracheostomy and nose every 15 minutes .Harriet’s breathing had become very erratic, her chest had started to contract,...

Today we returned to the QMC in Nottingham with Harriet to see the consultant of neurology Mr. William White House. We initially arrived just after  11.30 am and parked directly outside the hospital and got all Harriet`s medical and essential equipment together, including her suction machine, emergency Tracheostomy case, feeding and oxygen machines.The...

Time seems to go so fast yet some instances so slow..Harriet is now six months old and we are awaiting the long awaited results from both Great Ormond Street Hospital and also the Queens Medical Centre and the Royal Derby City Hospital which now should be in the next few weeks....

We returned to the Derby City Hospital today to see the Physiotherapist to try and move forward with a programme for Harriet as her back was getting worse which was having an effect on her breathing .The physiotherapist started the session slowly as Harriet secretions were quite bad  and required regular suction...