Blog

In the search to find a cure for Harriet`s debilitating white matter condition, we have come across many stumbling blocks and have had to do a lot of research into what can only be described as a Stem Cell mine field.Over the course of the last 3 years, we have constantly...

It is now just over four weeks, since Harriet suffered a serious respiratory attack and was admitted to the Royal Derby Hospital`s, Children Intensive care Unit. Harriet is still not one hundred percent, but is slowly getting back to a stable condition for Harriet.After Harriet had been discharged from hospital, the...

As the colder months and darker nights started to draw in, we knew that it was only a matter of time, before Harriet would be at risk from Viruses and infections that came with the colder winter months.Harriet`s doctor came out to give Harriet and myself the Flu Jab on the...

 Harriet's brother Jonathan Gregory and his friend Thomas Smith, decided in June that they were going to run the Lichfield 10Km run and raise funds for the Lighthouse Nursery.Jonathan approached the Lighthouse nursery and told them that he wanted to help the nursery which Harriet attends twice a week, by raising...

 The Dynamic Trio strikes again to raise funds for the “ Help Harriet Trust fund”.Sarah Conway & Alex Alexander, together with Mandy Penbreigh themed their fund raising night as a babies and all dressed in romper suits and baby wear, which was a sight not to be missed.Pubs in Long Eaton...

 

In May 2009 the world as I knew it was turned upside down, nothing could have prepared me for the months of heart ache and pain ahead.

My daughter Harriet was meant to be our fifth and final child, everything seemed very normal leading up to the birth of my daughter, but things quickly went very wrong after she was born.

Doctors handed me our baby girl, but after only a short few minutes, they noticed that something was not right and quickly took her from my arms. Our little girl was struggling to breathe and started to go blue, the doctors were continually suctioning mucus from her nose and mouth, but she was still in distress.

My daughter was then rushed to the children`s intensive baby unit, the consultants were puzzled and were not able to tell me exactly what was wrong with her, or how long it would take to give me any answers. The only thing they knew for sure was that Harriet was unable to suck or swallow.

I felt very numb and found it hard to take in that there was something seriously wrong, as I looked at my daughter in the incubator, I could feel the tears running down my face, there was simply nothing I could do to help her.