It had only been a few weeks since Harriet had an assessment by her neurologist at the Queens Medical centre in Nottingham, he was very happy with Harriet`s progress and was pleased that she had not been admitted into hospital .
A matter of a few weeks on and we noticed that Harriet`s saturations levels started to change, the monitor was showing that Harriet had not only lower levels of oxygen in her blood, but her heart rate was significantly raised, which was very alarming .
We did not panick and thought that Harriet may be teething or had picked up a virus and therefore continued to care for Harriet in our usual way. As the day progressed we noticed that Harriet`s condition was starting to deteriorate and decided to do an emergency tracheostomy change in order to rule out that there was nothing blocking her air way.
The tracheostomy change was done and Harriet was still deteriorating, it was simply heart rendering to see Harriet in distress, there was nothing we could do and new that if we did not call the ambulance soon that Harriet may not make it to hospital.
We called the ambulance and within a few minutes the first paramedic was on seen, she asked about Harriet`s condition and helped us give Harriet nebulizers and oxygen to try and control Harriet`s breathing, but this was simply an uphill struggle and the second ambulance team arrived to collect Harriet.
All we could think about was getting Harriet to a safe place where they had the equipment and people that could help our little girl, the journey in the ambulance was very quick, but Harriet was still deterioate.