Blog

Harriet had been discharged from the Queens Medical Center Hospital in Nottingham at the end of August 2014, she was still very vulnerable and we both knew that she would need a lot of care, but nothing could have prepared us for the months ahead.A week after Harriet had been discharged...

After Harriet had seen the spinal surgeon Michael Grevitt on August 20th , we were pleased that we now had a plan to get her spine repaired in the middle of September.The following day we noticed that Harriet was starting to get a temperature and were not sure if she had...

Having struggled to fight off the Chickenpox virus in July, we thought that Harriet would finally turn the corner and start to have some better luck and enjoy the rest of the summer.Harriet had only been discharged from the Queens Medical Center Hospital in Nottingham for a few weeks, when we...

Harriet`s brother Michael had contracted the chickenpox  virus in the first week in June and became very tired, run down and slept a lot of the time. He was kept well away from Harriet and our other children, as we were conscious that if Harriet caught the virus, she would have...

Last week was a busy week for Harriet and ourselves, we had to attend the Queens Medical Center in Nottingham, for a neurological review and a spinal review and had to give blood samples for the genetic tests.Tuesday 3rd June 2014 - we arrived at the Queen's Medical Center in Nottingham...

If someone had told me 5 years ago, that I would be writing a blog to mark Harriet`s 5th Birthday, I would have said that it would not have been possible. All the consultant`s, doctors and nurses were telling us that Harriet had a life limiting disease and to make the...