It had been nearly three weeks since Harriet had her Gastrostomy operation at the Queen`s Medical Centre Hospital in Nottingham. The scars were starting to heal and Harriet looked alot better, now that her nasal gastric tube was no longer on her face.
A few days ago things looked as though they may take a turn for the worse, we noticed dark fluids, which looked like blood coming back through the Gastrostomy tube from Harriet`s stomach. We phoned the kite team at the Royal Derby Hospital and asked if they would come out and have a look at the feeding tube. A member of the kite team arrived an hour later, she had a look at the new Gastrostomy tube and told us that it was still healing, but assured us that it looked alright, although she was not familiar with the tube the surgeon had fitted in Nottingham.
The blood continued to back up the new feeding tube and on Sunday, we were concerned for Harriet`s well being and decided that Harriet really needed to see someone at hospital. We took Harriet to children`s Accident and Emergency at the Royal Derby Hospital. We explained that we were concerned about blood in feeding tube, but were told by a nurse that the doctors would not know how to deal with this. To our dismay, the nurse then told us to wait in a room full of children with chicken pox and we therefore decided that this was simply too dangerous for Harriet and had to take her home.