I went to see Harriet today..And now she’s at home she does look a lot more comfortable. She was snuggled down in her cot when I got there after her feed she seemed so peaceful. Jason had been looking after her whilst Lesley took Eve to gymnastics for a few hours. When Lesley got back she got Harriet up and gave her some physiotherapy on her little hands and legs..I don’t think Harriet enjoyed it very much but unfortunately it has to be done. Tomorrow is Myles’s 11th birthday so Jason, Myles and me went to Toys R Us to find something ..I was distracted by all the pink girly things obviously not of interest to Myles (worst luck) We weren’t too long because Lesley wanted to take Harriet for a walk in her pram to one of the local parks...that in itself takes a bit of organising with all the equipment that is needed. You take it for granted that when you take your baby out it’s a case of hat coat and gloves but in Harriet’s case there is a lot more organising with basics and also suction equipment and oxygen ect. Lesley and Jason try and keep as normal as possible the running of the house and do as much as they can as a family unit including Harriet as they can
Grandma Penny
