Blog

 It had been quite a few months since Harriet had been seen by one of her consultants at the Queens Medical Center in Nottingham, but today we had an appointment with her Paediatric Neurologist Dr. William Whitehouse.It was an early appointment in Nottingham, which meant Harriet had to get ready an...

Harriet was having a much better year, she had been admitted to hospital once and only needed to visit a hospital for consultant appointments, was now at school on a regular basis and generally doing well.This year's Flu Virus vaccinations came out alot earlier and therefore we made sure that Harriet...

Harriet had been discharged from the Queens Medical Center Hospital in Nottingham at the end of August 2014, she was still very vulnerable and we both knew that she would need a lot of care, but nothing could have prepared us for the months ahead.A week after Harriet had been discharged...

A few weeks after Harriet`s first ever seizure , we met with the neurologist, Dr. William Whitehouse and some of the consultants from the Derby Royal Hospital, who talked about Harriet and to some extent the seizure she had at the end of June. The consultants felt this was an isolated...

In the search to find a cure for Harriet`s debilitating white matter condition, we have come across many stumbling blocks and have had to do a lot of research into what can only be described as a Stem Cell mine field.Over the course of the last 3 years, we have constantly...

It is now just over four weeks, since Harriet suffered a serious respiratory attack and was admitted to the Royal Derby Hospital`s, Children Intensive care Unit. Harriet is still not one hundred percent, but is slowly getting back to a stable condition for Harriet.After Harriet had been discharged from hospital, the...