Blog

Harriet had been referred to see a back surgeon at the Queens Medical Centre in Nottingham at the end of April by one of the Genetics team at Nottingham City Hospital and we were quite anxious to see whether the surgeon could help Harriet.We arrived at the QMC at 10.00am this...

Harriet Returned to PhysiotherapyHarriet seemed to struggle the last time we took her to physiotherapy and came down with a virus that saw her back in hospital and therefore we very careful not to push her too much on her first day back .Harriet settled in well and her secretions seemed...

Harriet was booked in to see the eye specialist in the Derby Children’s hospital this morning, we were quite apprehensive considering all the bad news we seemed to keep getting regarding anything to do with Harriet`s medical condition and just wanted to know whether she could see or not .The initial...

Harriet started to have breathing problems late Thursday night and kept us awake during the night as she needed regular suction from her tracheostomy and nebulizers to help maintain her saturations  . Harriet also needed long bursts of oxygen to help with her breathing, but she was still struggling .At about 2.30a.m Friday...

Harriet had been referred to the Genetics Clinic at Nottingham City Hospital to be seen by Mohnish Suri and his genetics  team , regarding Harriet`s development .We arrived at the hospital at 11.00a.m this morning and had to wait a few minutes until we were seen by the consultant and were not...